Comments for MyBlueGenome http://www.mybluegenome.com Information and support for genetic carriers Mon, 16 Apr 2012 05:47:17 +0000 hourly 1 http://wordpress.org/?v=3.3.2 Comment on To Introduce Myself and MyBlueGenome Blog by admin http://www.mybluegenome.com/10-to-introduce-myself-and-mybluegenome-blog#comment-1198 admin Mon, 16 Apr 2012 05:47:17 +0000 http://mybluegenes.wordpress.com/?p=3#comment-1198 Hi William, Good to hear from you. And keep listening to the show! Do you know of any children's books dealing with diseases or disabilities that "run in the family"? I will be starting a book page on this blog soon, I hope, and would like to include books for children. Hi William, Good to hear from you. And keep listening to the show! Do you know of any children’s books dealing with diseases or disabilities that “run in the family”? I will be starting a book page on this blog soon, I hope, and would like to include books for children.

]]> Comment on To Introduce Myself and MyBlueGenome Blog by william sawyers http://www.mybluegenome.com/10-to-introduce-myself-and-mybluegenome-blog#comment-1195 william sawyers Thu, 12 Apr 2012 01:11:56 +0000 http://mybluegenes.wordpress.com/?p=3#comment-1195 nice site, had to check it out from a children author in Concord, Ca. Found thru The Social Network Show nice site, had to check it out from a children author in Concord, Ca.

Found thru The Social Network Show

]]> Comment on To Introduce Myself and MyBlueGenome Blog by Hal Griffin http://www.mybluegenome.com/10-to-introduce-myself-and-mybluegenome-blog#comment-762 Hal Griffin Sun, 11 Sep 2011 18:35:54 +0000 http://mybluegenes.wordpress.com/?p=3#comment-762 Dr. Karwoski, I'm impressed with this site, and disappointed at what appears to have led you to establish it. Too often, patients are left to deal with the 500+ organizations you talked about. And they are left to identify a coping strategy, as the advice they receive from a licensed caregiver begins to decline, particularly if a case does not fit an established profile for treatment. Unfortunately, I have on two occasions seen my own Soldiers unable to find solutions despite the support provided by a very robust military healthcare system. You are doing a great public service, and provide an invaluable resource here. I wish you the best of luck as you move forward. I will remember this web site as the need arises. Sincerely, Hal Griffin Chief Warrant Officer Four (promotable) U.S. Army Dr. Karwoski,

I’m impressed with this site, and disappointed at what appears to have led you to establish it.

Too often, patients are left to deal with the 500+ organizations you talked about. And they are left to identify a coping strategy, as the advice they receive from a licensed caregiver begins to decline, particularly if a case does not fit an established profile for treatment. Unfortunately, I have on two occasions seen my own Soldiers unable to find solutions despite the support provided by a very robust military healthcare system.

You are doing a great public service, and provide an invaluable resource here. I wish you the best of luck as you move forward. I will remember this web site as the need arises.

Sincerely,
Hal Griffin
Chief Warrant Officer Four (promotable)
U.S. Army

]]> Comment on To Introduce Myself and MyBlueGenome Blog by admin http://www.mybluegenome.com/10-to-introduce-myself-and-mybluegenome-blog#comment-325 admin Mon, 31 Jan 2011 06:57:17 +0000 http://mybluegenes.wordpress.com/?p=3#comment-325 Thanks for reading, Dan. I'm interested in knowing in what sense you see carrier knowledge as something that would "help people you deal with." Could you elaborate? Thanks for reading, Dan. I’m interested in knowing in what sense you see carrier knowledge as something that would “help people you deal with.” Could you elaborate?

]]> Comment on To Introduce Myself and MyBlueGenome Blog by Dan@ivf success http://www.mybluegenome.com/10-to-introduce-myself-and-mybluegenome-blog#comment-321 Dan@ivf success Sun, 30 Jan 2011 06:51:51 +0000 http://mybluegenes.wordpress.com/?p=3#comment-321 Great Post.Always good to know whether you are a carrier genetically or not to help people you deal with. Great Post.Always good to know whether you are a carrier genetically or not to help people you deal with.

]]> Comment on Natural ways to reduce risk of genetic disorders in your child by admin http://www.mybluegenome.com/67-natural-ways-to-reduce-risk-of-genetic-disorders-in-your-child#comment-318 admin Sat, 29 Jan 2011 04:02:10 +0000 http://www.mybluegenome.com/?p=67#comment-318 Thanks for the input, Kelly! Thanks for the input, Kelly!

]]> Comment on Natural ways to reduce risk of genetic disorders in your child by Kelly http://www.mybluegenome.com/67-natural-ways-to-reduce-risk-of-genetic-disorders-in-your-child#comment-317 Kelly Sat, 29 Jan 2011 02:55:51 +0000 http://www.mybluegenome.com/?p=67#comment-317 Just wanted to share that we had a horrible experience with the clinic that does Microsort. As a carrier, we originally thought Microsort was a good option. However, we soon found that the clinic was more interested in making money than helping families like ours. When some of the preliminary tests revealed that our chances might not be as great as others, they refused to even let us try. All of this after investing almost $1000 on all of the tests, etc. Also, the nurses we talked to on the phone often forgot that we were doing it for genetic reasons and thus weren't as serious about everything as we would have liked. Anyhow, just thought I would put this out there for others who may be considering. We ended up doing IVF with PGD somewhere else and are now parents to a healthy baby. Just wanted to share that we had a horrible experience with the clinic that does Microsort. As a carrier, we originally thought Microsort was a good option. However, we soon found that the clinic was more interested in making money than helping families like ours. When some of the preliminary tests revealed that our chances might not be as great as others, they refused to even let us try. All of this after investing almost $1000 on all of the tests, etc. Also, the nurses we talked to on the phone often forgot that we were doing it for genetic reasons and thus weren’t as serious about everything as we would have liked. Anyhow, just thought I would put this out there for others who may be considering. We ended up doing IVF with PGD somewhere else and are now parents to a healthy baby.

]]> Comment on About by Jane Brittingham http://www.mybluegenome.com/about#comment-215 Jane Brittingham Fri, 10 Dec 2010 19:14:17 +0000 http://www.mybluegenome.com/?page_id=2#comment-215 Hi Dr. J, I learned a great deal from your blog and cannot wait until you add more. What an education I am getting! Hi Dr. J,
I learned a great deal from your blog and cannot wait until you add more. What an education I am getting!

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